D&C with Avalanna, Aileen and Cameron Routh and psychologist Cori Lipka

Let's bring in mrs. Justin Bieber here. And I've been I've been really really looking forward to talking to Avalon -- She's five years of age she -- Miramax and she's joined by our parents Aileen and Cameron and psychologist Corey left got. Welcome everybody hi Avalon how are you nice to see you again. How redo it says what did you do last night you were up late or -- -- -- -- -- -- bowling for how that will would you go bowling with Avalon Carol both our -- and I don't pull Josh Beckett Josh Beckett in the red -- him wake -- Tim Wakefield to Vietnam War. He's your favorites on Playskool. All. Got to me and I owner does jump the metro area hospitals or -- long did you bowl. Who are -- little nor. It. -- -- -- -- -- -- What you pretty good bowler Laurent born in nice to knock down some pins with the big borrow the black pants and paying -- The food the -- more okay Lisa told me a little while ago I won't. I -- me. -- won't He had no fastball and she's warm up now the question Norman well now Hillary -- the finish. What what is He she pulled you know what she -- with someone who's. Almost as pretty as you and Laura -- -- Oh no problem that my brother is a hi Heidi multi -- high heat loss widened on. You know -- Bring ad campaign alone -- Yeah. She's this. Did you do her nails. We now know that she need a manicurist and nail polish -- have no. But she did you could do that for her right formats and I'm getting more girl won't won't warm room. -- a little warm her own little maybe national John -- just aren't able on the show John you nails in his -- of those are very nice day. Now are you gonna do Jerry's deals this year. Or we got -- He needs it He needs help -- or slower and what color we do an Avalon good you're preparing our own good bull. Purple or yellow and Green blue Green blue that's a publicist. Definitely Tiffany Tiffany -- Avalon I heard you're you're actually a manager at this -- now or our. -- -- Are you aren't rules that -- mobile. Britney -- that -- bullying. And they're trying to -- more meaningful. It Perreault didn't -- good what do you do know many that I saw today and I know how to manage your. Deeper pool out you do your don't think that's the end of an update that -- you wanna -- my -- Now all -- eleven nightmares this. And then don't fingers here we can only -- formal future. I think that you know the customers pick up the colors. Blue and we are good at that you know I doubt it and the arrows -- we don't. Laura and I don't conflict and are around for a -- plants -- so. Before we get to everybody else what would take the Mike away from new clues into -- meter less. It's. Mom mom tells me you've been riding horses. And cool and -- yeah I. Grayson -- -- We can hold your I was hanging bulls -- I mean that real angles at temple. Look at -- something -- and you're going to be Irish populace in the Irish music or. Galore like He has -- -- -- listen to your whole -- What it. It's like it that's anchors a follow -- Lisa told me a little while ago you got married to react when I'm very little walking me down did not want you got married to Justin Bieber. Also your missiles Justin Bieber -- and how the -- go what happened at the wedding. How old and I won't. And He -- full -- anymore and won't pull in seeking to -- and will. Actually tell you want PM room one. He was there music. For clues and -- always -- -- I get the absolute how. He can -- world we're here comes the bride -- on the guitar. Warm where their flowers. Bloom your -- two hours -- Immelman let He whom annual. -- like -- -- -- I didn't reindeer aren't cool. You -- did you or did you have wedding cake. Why don't tell me that Paul and I plan if it again you might like it. Out walking graduation. Heard she's mad at me for something I wrote what what was what was wrong. -- -- -- And yeah exactly of the Indiana. You -- and that means I won't bring parking only lukewarm on hang on don't -- -- -- You know. I knew it was just something that -- vote in the Paper that He must talk to him about. Well I yeah song He acts. And why did you say he's not I don't think if you are a little bit if I don't want I don't. I don't know her fat no salt and -- the -- pretty sound. Yet your notebook who -- think -- -- girlfriend Cooper who go to Google goggles okay and yeah. Think it's a good gonna cuckoo dollars and all of -- -- haven't -- Also joining a serious psychologist -- -- and more you should know that everybody who comes to the Jimmy Fund clinic is assigned to a psychologist. Or social worker. Horry says she was lucky enough to be paired up for the -- family tell us about that. Yeah have I'm we're really lucky at -- -- Favre Eric's shoes -- Yeah. I'm really excited -- -- to be able to get everybody assigned to psychosocial provider news we have a philosophy that cancer doesn't just affect the peace and in fact it affects the entire family. And in order to provide that support having. People who aren't doing pokes aren't doing medical exams aren't doing. Anything to the childhood and being a support playing is an important part I think of the care that we provide that. Now you're role with the level -- has changed over time has -- not impact anywhere wasn't where it is now why that happened so I met Avalon -- when she was nine Montel well out there wasn't a lot of therapy gallon you have really let. I had the opportunity tags get to know her parents and and provide support to that. I'm around what's a very scary experience to hear that your child has a brain tumor and that there are about to undergo. I'm very toxic therapy. And on over time atop a lot of has developed I've been able to do more and more with her play therapy medical play. Helped -- adjust and -- to the clinic which doesn't require a lot because she's a wonderfully well adjusted content from. And -- over the past year we've been having meetings and we talk about feelings and -- -- who we have blank books that get filled up. With stamps and stickers have feelings -- -- seven He had trouble coming members shall we just know we've been working on not a lot of time. And distribute nails -- that no -- she's very focused on the books and telling me you know how she's suing an eight. You know one of the things that came lap band recently was -- we -- going through some feelings as to why Phil thank file. And I civil what are you thankful about and she said I'd be thankful for my family and I said who's fat and she said were okay and Charlayne. You Christine Betsy who -- at least Martha and I realize that this is why we do the work that we do right we are part of the family were part of who she knows and we're part of I know this whole experience for her and I think it makes our work even -- Actually talked about -- -- about this a lot when does it become toughest at what age it. And obviously union nine months old -- you don't know what's going on you said they -- you told me that she stuck in the figured out which makes which is another added. Element to your struggle here she knows. Closed it's it's harder and harder to protect her from. The harshness of this reality. And an up until now we've just I was given her very age appropriate information. That she's curious and she's as smart as a quick -- so we really need to. You know we have to -- with more in code you know we also. If we wanna protect resources we can and I can that is allowed her have as normal a childhood as she possibly can. I ask you what kind of questions she asks you guys what she's curious about what she wonders what she's not happy about because she seems as. -- said very well adjusted and in Brighton kind of happy. She says she is happy and she has questions about. Yeah I am right now and and you know and other. Other things you know not being able to keep up -- in terms of running and jumping right. And then missing a lot of schools wherein we still have a lot of therapy and continues to therapy have to fight skiers. And she does that -- of jury. From the clinic and she gets led to write from she was so excited concedes Jerry -- -- yeah. You know at the -- the bush is meeting the with the players -- sadness of the kids last night and what she was telling them that I would see -- to my non. It was very -- -- about scary and Islamic sure he'd got these flowers and he's nails painted boomers and it -- it today and and days like this there's so important for Avalon and loudest so important to the clinic and for people to see. What's really is going on out there Avalon -- starting kindergarten tomorrow. Congratulations. From her and I mean that the -- Sunday there where she's very excited. Her new backpack yeah her new outfits and I'll -- Bully energy level of kindergartens -- going up tomorrow and -- -- -- our best friend is -- -- cloud of another nice. Think I think what we have to remember is that she is where she is today but we still have our have Alanna with us -- to -- years of treatment and continue to be in treatment. Because -- Dennis harper and because of the Jimmy Fund clinic and and we need some people to donate. Two today to the telethon -- the Jimmy Fund clinic. And and it doesn't have to be allowed but we have to remember that only 3% of the national cancer institute's budget goes to pediatric cancers -- and the rest is funded by us you and I and other families out there. So it doesn't take a lot to make a difference that you have to help Avalon and all the other little kids and we do this for -- a -- are also in tribute. To the children we have last among the way and our dear friend Charlotte O'Shea and all that wonderful kids that have. Passed this year and the year before we needs to fund -- York. I don't know it's logical or illogical that the parents who were stuck in this nightmare are the ones who want to do and are compelled to do the most in terms of financial giving. As opposed to the ones who have kids aren't too afflicted with this and haven't yet and I say yet had cancer affect their lives. Wouldn't give I mean the people who who are like you seem to do the most I guess that's because you understand the reality of all this. We send the -- a -- also it seems very as. It just -- regular citizen that that didn't have a child with cancer Pryor and I didn't even know Jimmy Fund Bosnian she thought it was a front man didn't even know it was clinic. And I think there's a lack of awareness out there and also cancer seems very far from your door and suddenly its in your home. Within a matter of 24 hours and you think will never affect -- and it does and we need to be. And proactively getting that message out there and getting funding for the clinic and for it for treatments. Viewing the at least know that you're in the right place right I -- you at least know that if there's any chance at all. This is this is where it's happening this is where you have your best shot that don't. No open we couldn't media outlets like dad let dad say so yeah I'm the no question there we win ally was first diagnosed we did a lot of research in. Looked around the country and and I says she's not she's eating the nail polish. It's definitely it's it's flavored yeah. And we looked around the country but this is we're fortunate to be in the right place -- in just come on Jimmy Fund and and Children's Hospital. Because it was locally we've. Came in because it was gave that one of the best chance and treatments -- -- the fantastic support has been awesome. Really we we couldn't have gone to their mission -- abortion to be can you tell us what she's afflicted with. Eight TRT it's very rare disease only about thirty children. In the US. Are diagnosed with this disease. Until the eighties it was misdiagnosed says -- Blackstone which most common. He's a pediatric brain cancer. There is no cure for this disease there there were still looking for things to work and fortunately the treatment deadlock continues to go through is at least. At least contain the disease keep it stable. But you know what this is one of the reasons why it's important donate his diseases like this just. Don't have cures and and additional researchers -- right you get to and when it's so. Rare it He gets overlooked and that's absolutely mean thirty cases years so so clearly there's not going to be a big shift in funds for this disease -- a lot of other diseases as well. But the same time -- particular obviously we're parents of the child the charity so it's some very closely but. There are other illnesses like aids charity that need. That they need attention and HE -- we're doing everything we can there's. -- TRT fund has been established to try to direct funds for additional research. And again -- -- Barber's been excellent and I its you know its its. It's small it's a disease doesn't get through the funding in the larger diseases get but it is getting funny things that Dana Farber. Cameron Aileen Corey. And -- -- Thank you -- very much good to see you again I think she's wrapping up work on Jerry's fingernails are they turning out over there -- the wanna -- jury's still look really good. -- Microphone I lost my ass and they don't like us. With the fact that. One -- yeah. How juries -- turn out why did you use all three color -- last night. -- who bear the out there are purple and yellow one. And Tiffany blue. It's a beautiful job. And angling -- on one hand yeah I'd like the other hand Avalon yeah that the C only has -- on one hand you've seen it like that before your life. Why don't. Own it anymore it's all morning long you know. Very nice to see you go we say hello to you next year I'll look forward to that. Right you take care thanks -- 8777381234. That my friends is why we're doing -- and the rebel insurance tote board did -- 2191000. -- I just -- lord knows we doubled it and after listening now line up please please give anything you can just gotten kindergarten on the same day sale at any just -- exactly things are far from -- -- -- -- really -- this is the WEEI -- Jimmy -- radio telethon live from Fenway Park.